What is an Advance Decision to Refuse Treatment (ADRT)?
An Advance Decision to Refuse Treatment (ADRT) is a
decision you can make in advance, to refuse specific
treatments in certain circumstances in the future. This
can include the right to refuse life sustaining
treatment. Before making an ADRT (sometimes also called
an Advance Directive) you should discuss the contents
with your doctor or another member of the care team to ensure that you are clear
regarding which treatments you wish to decline and that
you have a full understanding of the possibility of
discomfort and putting your life at risk. For example,
if you use Non-invasive Ventilation (NIV) your ADRT
might cover any circumstances in which you wish the NIV
to be withdrawn. An ADRT is legally binding and replaces
documents which used to be known
as a ‘living will’. It only becomes valid once you lose
the ability to make or communicate those decisions.
Why do people make ADRT's?
A very important part of MND care is that the patient
should feel in control of what happens to them at all
stages. AN ADRT can be used to make those wishes clear
to those who care for you.
Who needs to know about my ADRT?
If you have made an ADRT you need to ensure relevant
members of your health and social care team and your
family/carers are aware of its contents. It is helpful
to keep a list of everyone that has a copy. You may wish
your local ambulance service. Sometimes people decide to
wear a bracelet or carry a card informing people
that they have an ADRT and listing who has a copy.
Where can I get hold of an ADRT form?
You can ask a health or social care professional, such
as your GP or hospital team who may already be involved
in your care. The form which we make available to
patients within our care in Sheffield can be downloaded
If you wish to discuss making an ADRT in more detail
then please contact