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Guide To Advanced Decision to Refuse Treatment

What is an Advance Decision to Refuse Treatment (ADRT)?

An Advance Decision to Refuse Treatment (ADRT) is a decision you can make in advance, to refuse specific treatments in certain circumstances in the future. This can include the right to refuse life sustaining treatment. Before making an ADRT (sometimes also called an Advance Directive) you should discuss the contents with your doctor or another member of the care team to ensure that you are clear regarding which treatments you wish to decline and that you have a full understanding of the possibility of discomfort and putting your life at risk. For example, if you use Non-invasive Ventilation (NIV) your ADRT might cover any circumstances in which you wish the NIV to be withdrawn. An ADRT is legally binding and replaces documents which used to be known as a ‘living will’. It only becomes valid once you lose the ability to make or communicate those decisions.

Why do people make ADRT's?


A very important part of MND care is that the patient should feel in control of what happens to them at all stages. AN ADRT can be used to make those wishes clear to those who care for you.

Who needs to know about my ADRT?

If you have made an ADRT you need to ensure relevant members of your health and social care team and your family/carers are aware of its contents. It is helpful to keep a list of everyone that has a copy. You may wish to inform
your local ambulance service. Sometimes people decide to wear a bracelet or carry a card informing people
that they have an ADRT and listing who has a copy.

Where can I get hold of an ADRT form?

You can ask a health or social care professional, such as your GP or hospital team who may already be involved in your care. The form which we make available to patients within our care in Sheffield can be downloaded here

If you wish to discuss making an ADRT in more detail then please contact Theresa Walsh

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