If you are admitted to
hospital please ask a relative or a nurse on the ward to
inform the MND care Co-ordinator at Sheffield Teaching
hospitals trust on Tel: 0114 222 2266 so that we can
offer them support and advice about MND as required.
An answer phone is available
out of office hours. For urgent advice please contact
MND connect or your own GP.
What's the difference
between MND and ALS?
Guide to Riluzole
Therapies available through centre
Guide to PEG/PIG
Guide to Advanced Decision
to Refuse Treatment
Brain and Spinal Cord Donation
Links for Research
Sheffield Institute for
The School of Health and Related
Dementia and Neurodegenerative
Diseases Research Network
Links to MND
support groups and information sources
several support groups providing comprehensive
information for patients and carers living with MND.
1. The Motor
Neurone Disease Association (MNDA) has
an excellent website including sections on diagnosis,
symptom management, local contacts and current research. MND
Scotland is a site aimed particularly at
those patients living in Scotland.
2. Click here
to visit our web-based resource MyTube for more
information about feeding tubes.
3. Click here to
visit our web-based resource MyNIV - a guide to using
non-invasive ventilation for people living with motor
4. The South
the MNDA also has a website.
video interviews with 46 MND patients and their carers,
detailing their experiences of all aspects of the
6. Build-UK is
an MND network where patients and carers can share
advice and ideas.
Like Me is a global patient networking site
covering several disease-based groups, including one for
8. The Amyotrophic
Lateral Sclerosis Association (ALSA) is
a US-based site that provides a similar range of
information as the MNDA (see above).
9. The ALS
Therapy Development Foundation is
a non-profit biotechnology company aiming to discover
new treatments. This website concentrates more on
10. If you wish to discuss
your condition with other people living with MND then
this option is available via the MNDA Forum